PCOS

Re: PCOS

Saskia Quinn — Wed, 19 Aug 2009 22:02:52 GMT

Well, I hope that things start to improve for you real soon.

You should try and rest and just take things easy for the time being.

Re: PCOS

Sal the 1st — Wed, 19 Aug 2009 18:13:50 GMT

1st lot of blood results - magnesium is a bit low, kidney values are a bit high, liver is ok, rbcs are quite low and wbc also on the low side (I had a sneaky look). Whats wrong with me? - I still dont think they have a clue but the next person to come anywhere near me with a hypodermic had better be wearing some serious protection - I am sick of being used as a pin cushion

Still dont feel ill at all - perhaps just a bit washed out and definitely fed up. No fresh bruises today except where people have stuck needles in me. Looking a bit yellow at the moment but have been told it is nothing to worry about. - and there is little chance of me being infectious - so that has to be good news

Dont have to go back until Friday now if things stay as they are

Re: PCOS

Mrs Dot Dot — Wed, 19 Aug 2009 17:59:40 GMT

Hi Sal....hope things are ok?

Re: PCOS

Mac Feather — Wed, 19 Aug 2009 17:03:21 GMT

Hope u r ok Sal. x

Re: PCOS

Saskia Quinn — Wed, 19 Aug 2009 16:53:19 GMT

[quote user="sal the 1st"]

nope - the only thing different is the dianette (had last dose on Sunday). Also checking my liver and kidneys at the mo. Overheard consultant and another doc saying it wasnt DIC because I wasnt sick enough (which was something of a relief )

[/quote]

how are you fairing out today Sal?

Re: PCOS

Night — Tue, 18 Aug 2009 20:40:07 GMT

Hope you're better soon Sal. That sounds horrific.

I've suffered from unexplained infertility for years and the Consultant decided I had PCOS due to me being a hairy monkey and a little overweight. Had a patency test and various blood tests and they came back blank so the Dr decided to do an ex. lap. to see if I had PCOS and she said if I did they would pop the cysts. When I woke up they'd done an ovarian diathermy.

I can now get pregnant but have had two miscarriages [it looks like the last one was caused by me taking a lot of ibuprofen due to illness before I knew I was pregnant, and ended up with me in hospital due to blood loss] NSAIDs are known to cause miscarriage.

Just had another lot of bloods done and my FSH is high. If your FSH is above a certain level then NHS will not consider IUI or IVF. At the moment it looks like I would have to go private if I want to have any kids.I started trying when I was 31 which I didn't think was too old, it's now 7yrs later and the Drs are saying well you are a bit old. So my suggestion to people thinking of trying to conceive is start seeking advice from your Drs as early as possible, it took 2yrs for my Dr to believe me about my anovulation and refer me.

My acupuncturist and Foresight have been far more helpful than the NHS.

Re: PCOS

Sal the 1st — Tue, 18 Aug 2009 17:49:12 GMT

Re: PCOS

Saskia Quinn — Tue, 18 Aug 2009 15:34:13 GMT

Hi Sal

Definitely hold off the window frames and carpet etc for the time being!!

Do they have any idea what is causing it?

Re: PCOS

Sal the 1st — Tue, 18 Aug 2009 14:36:42 GMT

doing ok - sent to hospital for more bloods had my ear stabbed for clotting time which is about 40 mins had my rump stabbed with something to help me clot (presumably vit k - which I can tell you stings like a bugger) and I am back there tomorrow to see if my bloods are any better - have bled around my elbow joint rather than into it which is better news but also have a bruise forming around my ankle. Cant do anything that might result in a knock or a scrape and have been told to be careful if I am scratching an itch, the mogs have had their nails cut - so I guess that means I wont be putting in new window frames, laying carpet or fitting new bath taps tomorrow

Re: PCOS

Saskia Quinn — Tue, 18 Aug 2009 11:27:39 GMT

I am sure you are Sal, its not very pleasant for you either.

Let me know how you get on today

Re: PCOS

Sal the 1st — Tue, 18 Aug 2009 08:30:47 GMT

went to the docs yesterday thats how I know what caused the bleeding. Am due back there today, still oozing from blood sample site and this morning when I woke up the arm I have been laid on overnight the elbow is all swollen and bruised and I know i definitely havnt knocked it - little bit worried about this.

Re: PCOS

Anonymous — Tue, 18 Aug 2009 00:24:53 GMT

I got a really horrible boil from the Hidradenitis Suppurtiva that I get with my PCOS. I once tried to drain one of them with a needle and now I have a dent in my skin. :( The infection in the boils break down the tissue it's horrible. I hate this. Not to mention the horrible bumps/acne i get in my personal area and we're not just talking pubic :( It's a freaking nightmare. My GP and gynae have done swabs to see if it's part of the yeast infections i was getting but nothing comes up. yet they clear up when i take fluconazole on a 7 day course. It's flipping rediculous. no one has any answers and it takes weeks/months for the NHS to sort out my appointments so i end up having to go private and spend over £600 to get the treatment i need. Or i get the freaking run around at the NHS clinic or i'm just told it's woman problems and to deal.

Re: PCOS

Saskia Quinn — Tue, 18 Aug 2009 00:12:56 GMT

oh my goodness Sal, thats shocking

should you not go and see doctor or nurse? Hope you are better very soon xx

Re: PCOS

dinkyd — Mon, 17 Aug 2009 22:19:06 GMT

keep away from the kitchen heehee!

Re: PCOS

Sal the 1st — Mon, 17 Aug 2009 22:18:07 GMT

I am fine, dont feel ill, dont hurt anywhere - just look like something out of a car smash or some sort of freak. Have stocked up on plasters as I dont seem to be clotting too well ( and I thought this stuff was supposed to predispose you to clots?)

Re: PCOS

dinkyd — Mon, 17 Aug 2009 22:01:37 GMT

OMG doesnt sound too good - hope your ok!?

Re: PCOS

Anonymous — Mon, 17 Aug 2009 21:47:50 GMT

[quote user="sal the 1st"]

I started Dianette for this and another condition last Friday - today woke up with two very bloodshot eyes, petechial haemorrhages under eyelids, on gums, in mouth, in nose, lips, under finger nails. Developed two large haematomas where an item of clothing had been rubbing. Beware - although have had this before and has never had this effect.

[/quote]

Re: PCOS

Sal the 1st — Mon, 17 Aug 2009 21:40:14 GMT

Re: PCOS

FionaA — Wed, 12 Aug 2009 17:57:17 GMT

I have suffered from PCOS since I was 17, I am now 39, there is something I would like you all to know; I only wish someone had told me earlier.

Find out what your local authorities position is on assisted conception. When I was diagnosed I was advised that I may need IVF in the future.

I did not marry my husband until I was in my mid 30's, I went through all the various pre IVF treatments that were suggested by my consultant; which for info gave me all the side effects from hair loss, night sweats to murderous mood swings.

Eventually despite medical and surgical treatment my consultant advised that IVF was my only hope. To cut a long and painful story short I was on the list for a few months when I got a 4 line letter from the hospital to advise that; as my husband had a child from a previous relationship I was not entitled to NHS treatment and my name was removed from the list, they kindly sent a price list for private treatment in the same envalope! I am an RVN for ****** sake £4000 minimum cost is hardly in my price range. We were up front with my consultant from day one re my husbands child, but it was never mentioned.

I really don't want to upset anyone but forewarned is forearmed, I could have made different decisions re buying a house etc if I had known that I might need that kind of cash.

I have since met people who's local authority don't fund IVF at all, or only 1 cycle or have restictive age policies. Ask your consultant what your position is get educated, it can only help to make informed decisions.

Re: PCOS

Steph Phillips — Tue, 11 Aug 2009 20:59:48 GMT

[quote user="Rachel Jayne"]

My sister has ut & had t o have one huge (football sized the surgeon said) cyst & ovary removed the day after her 18th birthday, op took 4 hours 1.5 of which was stitiching her up, she'd been so worred about her weight gain she'd gone near anorexic trying to loose it so she had no s/c muscle for the surgeon to stitch with.

She's been taking the combined pill ever since to try & reduce tohe occurence of one of the other side, but at a recent u/s scan check up, the sonographer said there was a swelling on the the other side..... she went to see a doc at hosp when she was in uni who really scared her saying that there was probably no chance she'd ever concieve & she should consider egg harvesting.... quite a lot for a 21 year olod to take in, she's been very upset.

Has an appt tomorrow with the original doc who did the surgery on the first one, fingers crossed it won't mean another op....

[/quote]

I hope she gets all the answers she needs!! that is an awful lot of trauma/grief for a 21yr old!!.. how tragic also, that they said she may never concieve! - so sorry for her!.. hope she feels better soon.. xxxx Steph xxxx

Re: PCOS

Rachel Jayne — Tue, 11 Aug 2009 20:41:52 GMT

Has an appt tomorrow with the original doc who did the surgery on the first one, fingers crossed it won't mean another op....

Re: PCOS

Faye Sewell — Tue, 11 Aug 2009 10:24:31 GMT

[quote user="Steph Phillips"]what is a Subseptate Uterus ? I've not heared of that before, and my GP's not mentioned it..[/quote]

Have sent you a private message x

Re: PCOS

Steph Phillips — Tue, 11 Aug 2009 08:05:20 GMT

[quote user="Faye Eaton"]

Steph, so sorry to hear your not having much help from your gp. I see you have had scans but id ask for more you could have a Subseptate Uterus that can be caused by pcos and causes miscarrages??. Please let us know how u get on in September. Have you been on the website I menttioned at the first post? they will support you alot and give some good advice. Take care Faye x

[/quote]

aw thanks faye :) .. I will let you know, my apt is 25th sept.. so a while yet! .. what is a Subseptate Uterus ? I've not heared of that before, and my GP's not mentioned it.. and Ive had a healthy pregnancy with my son 6yrs ago.

Thanks again for your kind words.. I'll check out that site now :) Steph x

Re: PCOS

Faye Sewell — Tue, 11 Aug 2009 07:40:37 GMT

[quote user="Steph Phillips"]

I've recently been diagnosed with PCOS.. But my GP said I was in a 'grey area'??

My hubby and I have been trying for another baby for 3yrs, I CAN get pregnant, but I have suffered 4 miscarrages.. I've had so many tests etc, had 2 scans in 4mths recently and it shows one ovary larger than the other, and both with multiple cysts.. docs confused as my hormone levels are normal.. I have no symptoms, she says pcos affect 'getting pregnant' but I dont seem to have a problem! going to see a specialist in september... so annoying as I want an explination to my miscarrages and also if I can have another healthy pregnancy (I have a 6yr old)

[/quote]

Re: PCOS

Steph Phillips — Mon, 10 Aug 2009 22:19:09 GMT

I've recently been diagnosed with PCOS.. But my GP said I was in a 'grey area'??